Hi Kia Sophia! I'm so sorry to hear about your bedridden days, but I'm delighted that you have "normal" days. If you MUST have bedridden days, I pray the ratio could be 1% bedridden to 99% mormal. That would be super!
I was on long term disability and when that ran out, I had to go on SS Disability.
I couldn't work at all, because I didn't know how I was going to be functioning at any given moment, on any given day. I don't know anything at all about working while you are on SS Disability except that you dare NOT do it behind their backs.
What they DON'T know, will, in the end, hurt YOU. Don't be afraid to call them. Explain your situation and ask what the regs are about working. I think it would be best to accent the bedridden days and keep the good days at a lower level.
You could also go online and type Social Security Disability into your search box and you'll find the official webpage and many more also.
I do know this - SS Disability and regular SS are 2 different animals. I'm almost OK now, and I'm collecting SS because of my age. The lady @ the SS Disability office did that for me when I turned 65, because she said I would get more money being on regular SS.
I'd have never known that unless she'd told me. They're good people, so call and you can make an appointment, if you want, or just ask questions on the phone.
Good luck! I'll bet the answer will be just what you want to hear.